I'm having another scared day today. I got the kidney test results and they weren't great. I was expecting them to be better than last time, but my protein level has gone up. It's not anywhere near where it was originally, but it is still scary and makes the baby thing even more pressing. I guess part of me really thought we'd get a break with that and get to spend a little more time doing our own thing, but it doesn't seem to be the case. I will see my nephrologist soon and discuss our options, but I refuse to do any more heavy treatments until I have a child unless he has discovered some miracle that he is sure will cure me and give me all the time in the world. I think he might have mentioned that. At the very least we have 2 cycles to try on our own. It's not much, and that's what scares me. Andy is doing SO MUCH better. It's amazing. he got some more blood work done and we don't have the results, but there are other things that indicate he is better, and so I'm excited for these two cycles before the final decision. My temperature confirms that I ovulate, and I'm not convinced I have been doing the OPKs correctly so I'm going to follow the directions strictly this time and not pee for 4 hours beforehand. I have been SO CLOSE to positive before and I think that could be the difference. We'll see!
I was thinking about taking soy this cycle but because it can move ovulation up and I might not be in town I want to wait until next cycle to see how that plays out. I just really don't want to do IVF, and I feel like... what if we try naturally for 2 cycles and find out everything is normal again with Andy. Do we bother with IUI? Do we go to IVF because of my kidneys? It feels like... what if we the third natural cycle would be the one and we spent 7 grand on IVF anyway? I'm thinking that if all tests come back normal in June I might push IVF back to September. It just doesn't feel right to jump right to it if things look normal. I don't want to do it because I have a timeline in my head of when I should have a baby, and 2 more months shouldn't be an issue with my kidneys. It all depends on what happens in June, but... there are just so many big decisions. I want all of this to be easy. Duh. Who that is dealing with IF would say they didn't want it to be easy? I'm just scared. I'm scared of finances and never having a baby because no treatment works. I'm scared of my kidneys getting worse too fast and... lots of things.
I just want something to be a little easier. I want a break. And God knows I am so thankful for Andy getting better. I just want to be on a normal playing field for a while. We have to fight and dig ourselves out of so much just to get where most people get to start anyway, and I think we deserve for SOMETHING to come easily.
Well.. enough bitching I suppose. We've been dealing and we'll continue to deal, but it's painful emotionally right now. I'm so excited but so scared to let myself get excited because I've been so used to disappointment. I have decided not to test unless I miss AF. I don't want to look at negative test after negative test. I've been praying a lot. Maybe God will let us get that BFP this next natural cycle. Only time will tell. For now I'm unsure, but I'm leaving it in his hands and I know he'll take care of me in whatever way is best.
A snapshot of my journey from mom of none to mom of 2. My Gorgeous IVF baby is finally here. And so is her surprise brother!
Thursday, April 22, 2010
Friday, April 16, 2010
Two days ago, I congratulated a fellow "soul cyster" on her "pretty uterus". Oh dear. How times have changed. I don't think that if you'd told me a year ago that I'd be as excited by such things as pretty uteruses...uteri?.. as I am that I would believe you. I hope my uterus is pretty, too.
On a completely separate note, I've gained 26 pounds in the last 6 months, and we all know how conducive that is to helping a PCOS woman get pregnant! In my defense, some of it was due to long-term high-dose steroids. At least some of it was not. I plead insanity. I did write up a new program. It's not so easy to lose weight when the one problem you have (PCOS) requires you to eat unrefined foods and whole wheats and grains and proteins, and the other (kidney diease) requires you to eat none of those things, because protein is bad for me in large doses, and the others are full of phosphorus, which is bad for my kidneys. This might be a fantastic example of a catch-22. Or the worst karma ever. I'm going to attempt to eat moderate amounts of everything. This may or may not help.
Oh, by the way, I'm terrified today that I'll never have a child. My kidneys have been killing me lately. I do not know why. Kidneys don't generally hurt. Mine do! And I don't know what it means, but I had to cancel my doctor's appointment. One day I hope to find out if my kidneys are still stable. If not... well... I'd prefer not to think about it. I will just hope that they are ok. Maybe my husband's brain tumor and my kidneys should have a pow-wow and discuss how much they really should start behaving. One of them has to be a good influence, right?
I'm also headed to a GI doctor because my regular doctor thinks I have ulcers (I wonder what would have caused that?). That would explain the constant pain under my ribs I suppose. I love my Lord and Savior, but I think he missed a few pieces when he put me together. I swear I'm not a hypochondriac and I really do have these issues. I told someone once that our house was the center for rare diseases lol. Thankfully non-genetic.
I had a dream I was pregnant two days ago. It was interesting. Usually I'm a 3rd party in dreams, but I was sitting there looking down on a baby belly. If only it were actually possible for me to be pregnant right now. I'd think the dream and the nausea were onto something! Alas, maybe next month.
We're still waiting. 7 weeks to go until the next SA. Hopefully I won't be in the looney bin by then. And then... FINALLY we'll have a plan. Man I can't even type it with a straight face. Ok. HOPEFULLY we'll have a plan!!! We're still planning for a July Pregnancy. this is founded in absolutely no scientific evidence. My mom and I are "feelers". And apparently optimists. That's a new one.
On a completely separate note, I've gained 26 pounds in the last 6 months, and we all know how conducive that is to helping a PCOS woman get pregnant! In my defense, some of it was due to long-term high-dose steroids. At least some of it was not. I plead insanity. I did write up a new program. It's not so easy to lose weight when the one problem you have (PCOS) requires you to eat unrefined foods and whole wheats and grains and proteins, and the other (kidney diease) requires you to eat none of those things, because protein is bad for me in large doses, and the others are full of phosphorus, which is bad for my kidneys. This might be a fantastic example of a catch-22. Or the worst karma ever. I'm going to attempt to eat moderate amounts of everything. This may or may not help.
Oh, by the way, I'm terrified today that I'll never have a child. My kidneys have been killing me lately. I do not know why. Kidneys don't generally hurt. Mine do! And I don't know what it means, but I had to cancel my doctor's appointment. One day I hope to find out if my kidneys are still stable. If not... well... I'd prefer not to think about it. I will just hope that they are ok. Maybe my husband's brain tumor and my kidneys should have a pow-wow and discuss how much they really should start behaving. One of them has to be a good influence, right?
I'm also headed to a GI doctor because my regular doctor thinks I have ulcers (I wonder what would have caused that?). That would explain the constant pain under my ribs I suppose. I love my Lord and Savior, but I think he missed a few pieces when he put me together. I swear I'm not a hypochondriac and I really do have these issues. I told someone once that our house was the center for rare diseases lol. Thankfully non-genetic.
I had a dream I was pregnant two days ago. It was interesting. Usually I'm a 3rd party in dreams, but I was sitting there looking down on a baby belly. If only it were actually possible for me to be pregnant right now. I'd think the dream and the nausea were onto something! Alas, maybe next month.
We're still waiting. 7 weeks to go until the next SA. Hopefully I won't be in the looney bin by then. And then... FINALLY we'll have a plan. Man I can't even type it with a straight face. Ok. HOPEFULLY we'll have a plan!!! We're still planning for a July Pregnancy. this is founded in absolutely no scientific evidence. My mom and I are "feelers". And apparently optimists. That's a new one.
Tuesday, April 13, 2010
So I got some clarification from the Doctor about our tests. They were not "pretty much ok". Granted, it was much better than I thought, but at this point our only option is still IVF. This makes me very unhappy. Our current plan is to get more blood tests done this month and then again in June and see if there is improvement. If we're still not at a point where we can do IUI then we will begin IVF. I am holding out hope, though. The most recent results were much better than I expected, and Andy's testosterone keeps going up. Dr. Fenig said it would take 3-6 months to see real results and we did the tests at just under 3 months, so I'm kind of curious and excited to see what happens in June. We'll be trying on our own until then. It's more difficult with Male Factor infertility to get pregnant on your own, but anything is possible with God's help.
I called Shady Grove today to double check to see if there is anything they want me to do since no one has ever confirmed ovulation. She said since my cycles are under 35 days they're fairly certain they are ovulatory, so the only thing they want to do is an HSG. I am so not looking forward to the HSG. I've heard some horror stories, but if it will help us to conceive it will have to be done. Maybe they'll let me take a xanax. I just want to get it over with. I'm praying we get our BFP before then so I don't have to do it lol.
For now, we're just waiting. Again. It's making me crazy, but at least I have 1 test to help prepare.
I called Shady Grove today to double check to see if there is anything they want me to do since no one has ever confirmed ovulation. She said since my cycles are under 35 days they're fairly certain they are ovulatory, so the only thing they want to do is an HSG. I am so not looking forward to the HSG. I've heard some horror stories, but if it will help us to conceive it will have to be done. Maybe they'll let me take a xanax. I just want to get it over with. I'm praying we get our BFP before then so I don't have to do it lol.
For now, we're just waiting. Again. It's making me crazy, but at least I have 1 test to help prepare.
Friday, April 9, 2010
Today has been a great day. I knew we would be getting test results back but I wasn't expecting anything fantastic. As a matter of fact I was expecting very sub-par results, and we got results pretty close to normal! I was dumbfounded, and still am, but very excited. We're still waiting on my kidney test results but if that comes back ok we're going to be on cloud 9. We're already most of the way there.
I don't know any actual stats, but from what they said on the phone it sounds like we might be able to have our baby through IUI or MAYBE even the old-fashioned way. My mom said we should just "go at it" to which I replied "Easier said than done when your mom lives with you!". Hint hint? Lol. We'll find out more definite information on Monday, but I'm happy. I still want to go in and see her ASAP. I'm hoping she'll give me some clomid to help regulate/time things and that she'll do an actual ovulation test, like a P4, because I don't want to waste time with not ovulating. Even if my kidneys are ok for now, it's not worth the risk for like a $4 prescription, so I'd rather just do it. That way the OPKs should work and I'll know when it's time. I want to go in today lol. Maybe if I can get in soon enough we can do a clomid cycle this month. I should be starting AF in about 10 days. I know she doesn't want to give me clomid but I know things aren't perfect in there and I want to help it out. Hopefully I can convince her. We'll see!!!
I don't know any actual stats, but from what they said on the phone it sounds like we might be able to have our baby through IUI or MAYBE even the old-fashioned way. My mom said we should just "go at it" to which I replied "Easier said than done when your mom lives with you!". Hint hint? Lol. We'll find out more definite information on Monday, but I'm happy. I still want to go in and see her ASAP. I'm hoping she'll give me some clomid to help regulate/time things and that she'll do an actual ovulation test, like a P4, because I don't want to waste time with not ovulating. Even if my kidneys are ok for now, it's not worth the risk for like a $4 prescription, so I'd rather just do it. That way the OPKs should work and I'll know when it's time. I want to go in today lol. Maybe if I can get in soon enough we can do a clomid cycle this month. I should be starting AF in about 10 days. I know she doesn't want to give me clomid but I know things aren't perfect in there and I want to help it out. Hopefully I can convince her. We'll see!!!
Monday, April 5, 2010
Ok. I won't say I haven't been thinking about things at all, but I've felt SO much better since my last post. I've been able to think about things other than babies and our failure to conceive one. I'm still very nervous about all of Andy's tests. We'll have some results hopefully by the end of this week and the rest on the 23rd, so we will be able to come up with a plan. I'm hoping to go back to the RE this month so that by the beginning of May we know what we want to do. We're thinking of skipping IUI altogether since the success rate isn't very high. We're hoping that Andy is completely normal and we can just try like normal folks soon, but if that doesn't happen, IVF in July right on schedule. I wish that we could try on our own while we were waiting for results and plans, but we keep hitting stumbling blocks. I also want Andy's medicine to work faster. The doctor told us up to 6 months, and though it has only been 11 weeks, I'm getting impatient. I keep thinking that things that are not back to normal will never get there. I know I need to give it more time but that's tough. I do not have my kidney tests results back yet so I don't know about our timing issues.
I'm feeling calmer about the whole process and much more trusting that God will carry us through this journey and that his timing is right and that eventually we'll see it. It is hard, and sometimes I still REALLY want control to be in my hands instead, but he's helping me cope and soon we'll know for sure what we're doing and that will be a huge weight off. I still want to get some tests done on myself, and I've asked Andy to make an appointment for ASAP after we have gathered all our tests results. I know the RE wants me to do an HSG anyway, so I want to plan and set up for that and the saline ultrasound since they're expensive and I don't want waiting on those tests to delay our IVF schedule (if we do need it). Still not looking forward to either test. I also want to get the basic bloodwork done to check P4, or a sonogram to see if I have follicles and such because if we don't do IVF, we'll be wasting time if I'm not ovulating. I know everything points to "yes" except the stupid OPKs, but I'm not convinced and I need that peace of mind.
I had another friend tell me she doesn't think we'll need IVF. Everyone seems to have "a feeling" about us, and I think it's just wishful thinking, but I hope not. I really do see us with a baby in our arms in the next year, year and a half, so we'll see. This month we have 2 appointments for results about Andy, 1 for my kidneys, and hopefully one for both of us to sit down with the RE and decide exactly what's next and get all my tests ordered. It's going to be a busy month but at least things are getting done. In the mean time I will continue to pray and ask God for guidance and peace, and hope that he brings us our baby (and that we don't need IVF [or the associated horrifying tests] and our miracle baby comes without much more medical inervention)!
I'm feeling calmer about the whole process and much more trusting that God will carry us through this journey and that his timing is right and that eventually we'll see it. It is hard, and sometimes I still REALLY want control to be in my hands instead, but he's helping me cope and soon we'll know for sure what we're doing and that will be a huge weight off. I still want to get some tests done on myself, and I've asked Andy to make an appointment for ASAP after we have gathered all our tests results. I know the RE wants me to do an HSG anyway, so I want to plan and set up for that and the saline ultrasound since they're expensive and I don't want waiting on those tests to delay our IVF schedule (if we do need it). Still not looking forward to either test. I also want to get the basic bloodwork done to check P4, or a sonogram to see if I have follicles and such because if we don't do IVF, we'll be wasting time if I'm not ovulating. I know everything points to "yes" except the stupid OPKs, but I'm not convinced and I need that peace of mind.
I had another friend tell me she doesn't think we'll need IVF. Everyone seems to have "a feeling" about us, and I think it's just wishful thinking, but I hope not. I really do see us with a baby in our arms in the next year, year and a half, so we'll see. This month we have 2 appointments for results about Andy, 1 for my kidneys, and hopefully one for both of us to sit down with the RE and decide exactly what's next and get all my tests ordered. It's going to be a busy month but at least things are getting done. In the mean time I will continue to pray and ask God for guidance and peace, and hope that he brings us our baby (and that we don't need IVF [or the associated horrifying tests] and our miracle baby comes without much more medical inervention)!
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