AF came this evening... after 5 so tomorrow counts as CD 1. I would think this means I ovulated when I thought I did - last Wednesday, but my temps were so low that I was thinking I was wrong. Maybe I'm just not producing enough progesterone. The good news is tomorrow starts a new cycle and we are pumped. I'm going to get some OPKs this month, and we're going to try to go as close to every other day as possible from around day 10. I know we're probably still dealing with the morph issues, but there's so much controversy about morph and if we have enough sex we'll definitely get the timing right. In previous months we'd only do it like.. 1 time during my fertile window so we're going to up that by a lot. I'm a little more hopeful this month because now I know that I have open tubes, so in theory there should be something to fertilize.

Normally I have pretty much no sex drive at all, but I've been working on it and I am really making some progress, so I think we're both feeling better about that part of our relationship and it'll feel more like fun than work this time around. We're both excited about the process again and that's really cool. Andy actually said today, "as often as we're doing it now we may not need IVF". I reminded him that the IVF is because of my kidneys, but it was still cool. It's neat for us to feel like we may have a chance going into this month. I'm excited for the 2WW again. I'm not sure how much of a shot we have with my temps not going up too much, but I might be reading into it, and so I've decided to be excited.

It's just nice to feel like "hey, we could get pregnant this month" again. I can't wait until my period is done and I can start peeing on sticks lol. And I should be getting my latest test results this week for my kidneys so we'll see what happens!

I haven't heard from my doctor, so I don't have any news on the kidney front. I did find out at my last appointment that my kidney pain can actually be caused by my IGA Nephropathy. Apparently my doctor didn't even know that, but did some research and discovered it.

Since I don't have any new updates, I drew a picture of my kidney and how it feels about me.

It is MAD.

And this is my immune system following in his footsteps:

I don't know what an immune system looks like, so that's what it looks like in my head. He has teeth because he's mean and hates me like my kidneys do. 

Well, I'm pretty sure I ovulated this month. Despite FF, I don't think I did the last two months. This morning I had the very tell-tale pain in my right side. I get a lot of pains around there, but this one is very specific to ovulation, so I'm hoping to see a temp rise tomorrow. This comes a few days after going down to 80mg of prednisone. The neat thing about it is if I did, it was exactly 4 days after getting watery CM, just like before! I hope this is a good sign and I get my period like I'm supposed to and we can try in January like we wanted to. I have an appointment with the OB on the tenth, and I'm curious to see what she says. I hope she gives the go, because if she does I an start the IVF. I should have my results from the 24 hour urine soon.. I hope they're good!!

I saw my nephrologist today. He seems pretty happy with how I'm doing, but he doesn't like that my blood pressure is consistently in the 140s/80s. I might have to start taking something, but he thinks it may be prednisone-related, so I'm not freaking out yet. He was very happy with how little fluid retention I have, and I turned in my latest 24 hour urine this morning so we should have results soon.

He spoke with the high risk OB and he said that he tinks he changed her expectations. She seemed to think that my kidneys would magically improve with prednisone, but he explained to her that I'm on a different course than last time, and that while I might se a marked improvement, I might not, and that if we want to have a baby, this is probably the best time to do it. I'm going to make an appointment to talk to her directly. He told her that I'm aware of risks and want to go forward, but I want to  go into detail with her and get all the facts. She still says the protein could be harmful for the baby but I just don't see how since it's not making me retain water or lose blood protein, so I'd like to know that. And then hopefully I can tell her I'm aware of the risks and I want to proceed and she will say OK. She did tell him she wants me to get a second opinion from another Hopkins Doctor. I think she forgot that I already did that and the guy pointed to a book, said "Here are the statistics with your creatinine" and sent me on my way. My nephrologist said I was more qualified to have an opinion than that guy. But, if he does that, he should give me a go because mt creatinine is OK, so if that's what I need to do then fine. I just want to get on the way to IVF. I'm hoping that having talked to him and getting all the details from me she will be able to go forward knowing that I'm prepared to do whatever I have to to keep this baby healthy. If I need protein shots or heparin (something about protein and blood clots) I dont care. I'm ready, and we want this. So hopefully they'll call me back and I'll get that appointment soon.

I don't know what to expect from my 24 hour urine. There was a lot more urine this time so I'd imagine there would be more protein, but I guess I can't say for sure. I'd like to see a reduction, but I'm still trying not to expect one. At least not until January. So I guess I'm still at a standstill, but I've got everything done and as soon as she OKs me I'm moving on to the IVF, so hopefully it won't be too long.... if she OKs me at all (I hope so!!!!!).

For now I'm still praying and doing my best to stay positive. Hubs is looking forward to the busy January schedule and so am I. Hopefully we won't need anyone's approval to have this baby and it will come next month! Only time will tell, but I'm hoping God's timing for this to happen for me is coming up soon!

The Hail Mary Cycle

What's that little flutter I'm feeling in my chest today? Could that be... hope?? Yes, I think it is!! And I've missed it!! This HSG has done a lot for me, but probably the biggest is re-establishing some hope where there was just so little for so long. It's not that I expected a blockage... but I didn't know, and so many things have happened I wouldn't have been surprised. I'd sort of resigned myself completely to IVF, but I was nervous about my kidneys and that being our only hope. I figured if my tubes were blocked it'd be OK... but then IVF would be our real only option. We just wouldn't conceive any other way by any chance. And if the doctors couldn't be convinced, we were done for in the fertility world. So today? Hope. And this brings us to the Hail Mary cycle.

If you're reading this blog I'm sure you know what I'm referring to. Hell, when I said it to my husband he knew what I was referring to. He asked for it in so many words a few months ago - remember - "Honey can we PLEASE have ONE more cycle where you say 'honey, we have to do it RIGHT NOW'?" Well, dear, we can. Thank you, God. Now that this HSG is over, I can start BCPs the second my kidneys show improvement. My RE does the mock embryo transfer during BCPs. I'm doing my 24 hour urine this Sunday since my period keeps screwing that up. We'll have some results that I don't expect much of. To be honest, I expect to start to see good news in January and get to start BCPs in February or so. MAYBE March. Which means January should be wide open. And there are some awesome things about January.

• I had an HSG this month. There is a theory rolling around that HSGs can up your fertility. Clearly, given my 30 second, non-rolling-from-side-to-side test, my tubes are clear. But supposedly they're more lubricated after it, too. So... maybe.
• I am down to 80mg of prednisone. 60 on 12/28, and 40 on 01/11. That's like a 20mg a day dose, which is a LITTLE higher than recommended, but WAY better than 60. Also, my period was relatively normal on 35mg , so hopefully the extra 5 won't matter much and I'll ovulate.
• Andy will have had 2 months of religiously taking his meds.

And... we now know that (prednisone aside) I'm OK! There's NO reason I shouldn't be able to get pregnant and have an implanter. I know the prednisone might have messed with day 3 hormones a bit, but on the lower doses I should be getting better.. hell they might be normal now. As for Andy.. well, he was being a jackass and not taking his meds, but by then he'll have more than 2 solid months of perfection. Plus I got him back in Zinc which helps with volume. More volume = more sperm. So even though his morph is 5%, if we get more boys, we have a better chance. And his last SA really wasn't that bad. he had over 30 million, and good motility, so there are definitely some guys in there to meet my egg! Plus, the 5% was strict, and it's very possible there are plenty more with super minor defects that could still pentrate the egg. So we'll see. And finally, we've agreed to a very busy uhm... schedule. Every other day from EWCM through +OPK, then every day for 3 days. Which is waaay more than what we usually do. We have low sex drives. It happens when you have a brain tumor and an SSRI drug meeting up to try to make a baby. But.. too bad. We're doing it anyway. We have fun, we just struggle to care beforehand lol.

And if it doesn't work... well.. that's the Hail Mary cycle. You pray and you ask the universe for positivity and you do everything you can. And if it doesn't work, you move on. But right now we're READY to move on. REALLY ready. Our cycle is paid for, our tests are done. And if my kidneys cooperate, I could be injecting myself for a February or March transfer! Things always take a few extra days, so right now I'm working from.. Good news Feb 1, star BCPs the next week. 3 weeks of BCPs, 2 weeks of stims, mid-late March transfer, and I'd be due late November (38 weeks, per OB). Even if we end up with an april transfer, we'll be trying on our own... which means t here is a CHANCE for pregnancy, and HOPE again. I'm begging my kidneys... I'm praying for them all the time. If they do this for me, I could REALLY have a baby by IVF next year or at least be pregnant. Or maybe even on our own. It's possible now. It's really possible!!!!

The Dreaded HSG Story

Anyone that has been reading my blog knows that I have been absolutely horrfied about this HSG procedure. I've put it off since June when it was first mentioned to me. This is mostly because I made the unfortunately mistake of reading stores on the internet. Some of these stories began with "I wish I could tell you something different, but it wa sthe WORST pain of my life". I read tales of people throwing up and crying and yelling and screaming. And me... after having my midwife say "You're getting and HSG? TAKE VALIUM" becaus of my issues in those areas... well, I was unhappy. This entire last week has been dreadful. So many moments have been filled up with "I'll be able to look forward to Christmas soon because my HSG will be over". Well, my HSG is over. And here's how it happened.

I took 1mg of Xanax Sunday night hoping it would take the edge off. It didn't. So I took 2mg on the way there. I felt loopy, but not like a bumbling idiot. It honstly felt lie having a really good buzz except my legs were a little woozy. I also took 800mg motrin (which I'm not supposed to have so don't tell anyone). I honestly don't thnk these helped with the pain except in 1 instance which I'll explain later. We were running very late because of traffic. It was a 45 minute drive according to my GPS, but it took us 2 hours. We'd left early, so we were only 5 minutes late for the actual appointment (though we were supposed to be there 30 minutes early). As soon as I sat down they called me back. I spoke with a nurse for a few minutes who answered my questions and put me at ease. I told her I was nervous, and she gave me the great news that my actual doctor (from a different office!!!) would be dong my procedure! Then took me back to the room. It was very familiar looking except it had a little more equipment. I undressed from the waist down and put on a gown. They had a huge pad to sit on and a reglar hospital pad for afterwards. When I came out, I sat on the table waiting for the doctor. She came in not 3 minutes later, had me put my feet in stirrups and scoot all the way down, as per usual. She put the speculum in, which, of course, is not comfortable, but it was less uncomfortable than my last pap. I could tell she was cleaning in there but barely - I almost didn't feel it. and then she said she was done. I assumed she meant with the setup, so I said "with the setup you mean?" and she said "No, you're all done". I couldn't believe it. I felt NOTHING.. and I mean that. Nothing. I sat up and she showed me the xrays and the spillage and I said "that was less uncomfortable than my last pap!". She said I was the second person to say that that day. The x-rays were SO COOL. I could see my uterus and tubes, and the dye spilling freely from both. It was amazing. And oddly enough, I didn't get any "spillage"... like onto the table when I sat up. I did bring a pad from home because I do expect something at some point, but... nothing so far.

I think the xanax helped a little just in that I was more relaxed than normal. I think how tense I am is probably what makes my paps uncomfortable. But the dye? Nada. I can't believe how little it hurt. I sat up, got dressed, and I'm at work. Andy drove and is picking me up because of my medication, but I would've EASILY been able to do it myself. So now I'm sitting here, hours later, with not a cramp in site. To be honest, and this is TMI, I'm a little gassy, and I feel bubbles, but that's it. It was easily smoother than an annual exam, and if they told me I had to get one tomorrow I wouldn't hesitate. I didn't feel the catheter go in, I didn't feel a balloon... nothing. From the time I was on the table and they put the speculum in it was literally 1 minute. Maybe 1:30.

AND everything is PERFECT. My uterus is actually smack in the middle.. perfect triangle shape with my tubes almost evenly distanced on either side. The dye spilled out so fast I didn't even have to roll over. No fibroids, no polyps, no scars... perfect. So now I can stop freaking out about the random pains. And I know I have an actual shot to get pregnant naturally!!!!! Once my kidneys are good, we've done EVERY test. I can literally sign papers and start BCPs immediately!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I can't believe what great news. Finally something has gone our way in fertility land!!!! My uterus is ready for a baby!!!

Edit: I noticed in re-reading that I had a LOT of typos. Please pardon those.. it was the xanax (which I really expected to knock me out but it did no such thing). Also, I feel SOMETHING "down there" which might be intestinal, or it might be the mildest cramp ever. Either way... I am a jackass for getting so upset. Andy's been taking his meds, and I'm down to 40mg prednisone every other day as of January.. Hail Mary cycle here we come. Oh.. she did mention I need to lose weight. Yes I know. I'm back on the train soon. Promise, RE.

Today was the day to test-drive the Xanax. I read that the starting dose was .25-.5 mg, so I tried .5 and it didn't do a damn thing. So I took another .5, and it still didn't do a damn thing. So now I don't know what to do. After what Xanax did to my mom and my husband I figured it would help me... and it really hasn't done anything at all. So I'm going to try a whole pill (2mg) on Tuesday, but now I'm terrified because I don't think it's going to do anything for me! Which makes the whole thing even scarier. I'm not less tense.. I'm MORE tense. I'm also freaking sick. I'm supposed to go to work tomorrow because I have to bring stuff in for Tuesday's baby shower because I might be in really late because of the HSG. But I feel like CRAP and I don't want to go to work. And there's no way I can make this cake tonight. I have no idea what to do. I have to get there at some point to get this stuff to the other girl putting the shower together. But I don't know how.